The Ethics of Biomedical Big Data
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Beschreibung
This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The bookadvances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.
This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The bookadvances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.
Is the first to address the ethical challenges posed by biomedical Big Data Includes analyses of both theoretical and applied problems concerning the ethical aspects of biomedical Big Data Identifies key issues and approaches in the debate on new data technologies and processing techniques Proposes international policy frameworks to address the ethical issues of an emerging disruptive information technology
Autor*in
Brent Daniel Mittelstadt
Themen in »The Ethics of Biomedical Big Data«
Big Governance Biological Samples Ethico-sociological landscapes Ethics of Biomedical Big Data Information Carriers Intensified Data Sourcing Mental health research Use of electronic health records
Stimmen zu »The Ethics of Biomedical Big Data«
“This substantial volume is a result of discussions about emerging types of data and their ethical, legal and social implications (ELSIs) in the biomedical sphere. … The book does, in separate chapters, give an interesting contemporary framing to ethical concerns which the attentive reader will appreciate. … the landscape is moving fast and this is now mostly a descriptive and theoretical text for bioethicists.” (Thomas King, Journal of the Royal Statistical Society A, May 23, 2019)
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