Cripping Endometriosis

Beschreibung

“For anyone who has been told that their pain isn’t real or that it’s all in their heads, this book will feel like a revelation. Rovito traces not only the fraught history of endometriosis and gynecological pain, but she also forcefully, boldly, and necessarily argues that we can do better and that we’ve always deserved better. This is an urgent feminist work that fuses scholarship and activism and offers new insights to anyone interested in the study of biopolitics, power, and gendered bodies.”
—Dr. Breanne Fahs, PhD, Professor of Women and Gender Studies, Arizona State University

“Maria Rovito’s book is a mirror held up to the systems that have failed people with endometriosis for generations. With courage and clarity, she weaves her lived experience into a larger tapestry that reveals the hidden legacies of medical racism, narcissism, and eugenics that still shape how society responds to pain, to women, and to marginalized bodies. As an advocate for endometriosis, I believe her work is essential reading—not only to understand the disease itself, but to confront the cultural, historical, and medical forces that have silenced millions.”
—Dr. Sallie Sarrel, PT ATC DPT, Co-Founder The Endometriosis Summit

This book argues for reframing endometriosis as a chronic pain condition, rather than an infertility issue. Drawing from feminist theory, disability studies, historical and archival research, and personal, embodied knowledge of living with the disease, it analyzes the deeply rooted misogyny and racism of Western medicine’s research and treatment of endometriosis as a “career woman’s disease”—a framing which demonizes women’s reproductive choices and focuses on gender roles rather than their pain, experience, and agency. Offering a unique lens through which we can re-examine broader issues of autonomy, authority, and agency within the healthcare system, it will appeal to scholars in gender studies, disability studies, medical humanities, feminist studies, and the history of gynecology, as well as women’s health advocates and healthcare practitioners.

Maria Rovito is Instructor of Medical Humanities at Albany College of Pharmacy and Health Sciences, USA and an active public intellectual.

This book argues for reframing endometriosis as a chronic pain condition, rather than an infertility issue. Drawing from feminist theory, disability studies, historical and archival research, and personal, embodied knowledge of living with the disease, it analyzes the deeply rooted misogyny and racism of Western medicine’s research and treatment of endometriosis as a “career woman’s disease”—a framing which demonizes women’s reproductive choices and focuses on gender roles rather than their pain, experience, and agency. Offering a unique lens through which we can re-examine broader issues of autonomy, authority, and agency within the healthcare system, it will appeal to scholars in gender studies, disability studies, medical humanities, feminist studies, and the history of gynecology, as well as women’s health advocates and healthcare practitioners.

Autor*in

Maria Rovito

Themen in »Cripping Endometriosis«

endometriosis disability autotheory gender feminist theory

Stimmen zu »Cripping Endometriosis«

“Maria Rovito’s book is a mirror held up to the systems that have failed people with endometriosis for generations. With courage and clarity, she weaves her lived experience into a larger tapestry that reveals the hidden legacies of medical racism, narcissism, and eugenics that still shape how society responds to pain, to women, and to marginalized bodies. As an advocate for endometriosis, I believe her work is essential reading—not only to understand the disease itself, but to confront the cultural, historical, and medical forces that have silenced millions.” (Sallie Sarrel, PT ATC DPT, Co-founder The Endometriosis Summit)

“As a surgeon who treats endometriosis and trains others in the field, I know firsthand how complex and misunderstood this disease remains. Maria Rovito’s book is both brave and necessary: it interlaces the deeply personal realities of living with endometriosis with a rigorous examination of the historical and systemic failures that perpetuate suffering. Rovito challenges the medical community to look beyond the operating room and confront the broader forces that influence diagnosis, treatment, and trust. This book is an urgent contribution to the conversation about what true progress in endometriosis care requires.” (Andrea Vidali, Founder Endometriosis Surgical Specialist International, Co-founder The Endometriosis Summit)

“This bold, urgent, and unflinching book refuses to relegate endometriosis pain to a footnote in medical history, positioning it instead as a central concern of feminist disability studies. Rovito combines razor-sharp historical analysis with literary insight to expose how medical racism and misogyny shape patient experiences, and her “poetics of feminist fury” offers a transformative new framework for understanding illness, collective resistance, and healing.” (Chris Bobel, PhD, Professor of Women/Gender/Sexuality Studies, University of Massachusetts at Boston, Author of The Managed Body (2019, Palgrave) and Editor of The Palgrave Handbook of Critical Menstruation Studies (2020))

“For anyone who has been told that their pain isn’t real or that it’s all in their heads, this book will feel like a revelation. Rovito traces not only the fraught history of endometriosis and gynecological pain, but she also forcefully, boldly, and necessarily argues that we can do better and that we’ve always deserved better. This is an urgent feminist work that fuses scholarship and activism and offers new insights to anyone interested in the study of biopolitics, power, and gendered bodies.” (Breanne Fahs, PhD, Professor of Women and Gender Studies at Arizona State University, Author of Unshaved (2022) and Fat and Furious (2025))

“Maria Rovito’s Redefining Endometriosis is a rich exploration of a deeply and willfully misunderstood disease. Rovito’s deep dive spans centuries of medical ignorance, misinformation and maltreatment to help tell the big-picture story of why endometriosis care — and many other facets of women’s healthcare — remain abysmal to this day. Reimagining Endometriosis views literature, media and rhetoric about endometriosis through the lens of feminist disability studies, offering readers a novel way to grasp the complexity and all-encompassing reality of living with this brutal disease.” (Tracey Lindeman, Journalist and Author of BLEED: Destroying Myths and Misogyny in Endometriosis Care (2023))

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