The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies

Beschreibung

“This is a must-read book for anyone interested in participatory, and neuro-affirmative and neuro-inclusive research.”  
- Georgia Pavlopoulou, Associate Professor, UCL, and Director of Group for Research in Relationships and NeuroDiversity (GRRAND) 

“This scholarly, comprehensive and highly readable edited volume is the first of its kind dedicated to research methodology within Neurodiversity Studies.” 
- Nicola Martin, Professor and Head of Research, Higher Degrees and Student Experience, London South Bank University, UK 

“A wealth of community-informed expertise on research ethics and methodological innovation that should be required reading for current and future generations of neurodiversity scholars.“ 
- Kristen Bottema-Beutel, Professor of Special Education, Boston College, USA 

“Rather than merely talking the talk, the editors and contributors are walking the walk of "nothing about us without us". 
- Nicole Brown, Associate Professor and Head of Research Ethics and Integrity, Institute of Education, University College London, UK 

This timely volume brings together well-established scholars and emerging voices to explore research methods and ethics in Neurodiversity Studies. It explores the epistemic injustice that currently surrounds much knowledge production around neurodivergence, and offers concrete examples of creative, participatory, and collaborative research practice in the field. The editors have assembled chapters combining reflexive, theoretical, and practical contributions. Together they address current debates surrounding participatory methods and Neurodiversity Studies and are unique in giving voice to mainly neurodivergent researchers and contributors across autism, ADHD, acquired brain injury, and multiple neurodivergence.  
The first of its kind, this much-needed volume contains essential reading for all those learning and teaching in the field of neurodiversity. It further represents a valuable resource for students and academics at all levels, participatory or creative researchers, research commissioners, and research evidence users across the social sciences. 

Chapter 4 is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.

Hanna Bertilsdotter Rosqvist is a sociologist and professor in social work at Södertörn University, Sweden. 

David Jackson-Perry is a sociologist and visiting scholar at Queen’s University, Belfast, UK. He is also a specialist in sexual health and HIV project manager at the University Hospital of Lausanne, Switzerland. 

This timely volume brings together well-established scholars and emerging voices to explore research methods and ethics in Neurodiversity Studies. It explores the epistemic injustice that currently surrounds much knowledge production around neurodivergence, and offers concrete examples of creative, participatory, and collaborative research practice in the field. The editors have assembled chapters combining reflexive, theoretical, and practical contributions. Together they address current debates surrounding participatory methods and Neurodiversity Studies and are unique in giving voice to mainly neurodivergent researchers and contributors across autism, ADHD, acquired brain injury, and multiple neurodivergence.  
The first of its kind, this much-needed volume contains essential reading for all those learning and teaching in the field of neurodiversity. It further represents a valuable resource for students and academics at all levels, participatory or creative researchers, research commissioners, and research evidence users across the social sciences. 

Autor*in

Hanna Bertilsdotter Rosqvist

Themen in »The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies«

Neurodiversity Studies Inclusive Research Methods Participatory Research Methods Research Ethics Neurodiversity-Affirmative Approach ADHD Neurodivergence Autism Neurotipicality Autistic Lived Experience Epistemic Injustice Disability Studies

Stimmen zu »The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies«

“This is a must-read book for anyone interested in participatory, and neuro-affirmative and neuro-inclusive research with potential to shift the narrative and improve outcomes with, and for, neurodivergent people. The authors describe in detail a range of methods used across a variety of disciplines in Neurodiversity Studies in a passionate and rigorous way.” (Georgia Pavlopoulou, Associate Professor, UCL, and Director of Group for Research in Relationships and NeuroDiversity (GRRAND))

“This scholarly, comprehensive and highly readable edited volume is the first of its kind dedicated to research methodology within Neurodiversity Studies. Informed by insider perspective, the work moves beyond the obvious and gets underneath thorny questions around topics such as ethics and co production. It is a must-read for researchers, students and others and certainly merits priority inclusion on a wide range of reading lists.” (Nicola Martin, Professor and Head of Research, Higher Degrees and Student Experience, London South Bank University, UK)

“Placing itself at the nexus of critical disability studies, participatory methodologies, and community care-work, this book traces the history of, and envisions a future for, neurodiversity studies as an essential program of research. The authors offer a wealth of community-informed expertise on research ethics and methodological innovation that should be required reading for current and future generations of neurodiversity scholars.” (Kristen Bottema-Beutel, Professor of Special Education, Boston College, USA)

“There are many books relating to neurodivergence, and there are even more publications relating to research methods. This collection is different in that it connects the two. Rather than merely talking the talk, the editors and contributors are walking the walk of "nothing about us without us". The collection offers insights into successful co-construction, co-creation, participatory research and autoethnographic work that is so needed in the space. Recommended reading for anyone and everyone who wants to learn about ethics and practicalities of research within the context of neurodivergence.” (Nicole Brown, Associate Professor and Head of Research Ethics and Integrity, Institute of Education, University College London, UK)

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